About Our Foundation

The EHL Fragile X Foundation, Inc. is a 501(c)(3) foundation started in March 2017 by Steve and Fran Marsino of Cape Coral, FL. after their grandson Ethan was diagnosed with Fragile X syndrome.


Their hope was to create a platform to inform and educate families about Fragile X syndrome and its associated disorders, to support families going through the uncertainty of a Fragile X diagnosis, to foster understanding and inclusion in the community, and to support research for a cure for Fragile X.

Our Mission

  • Community Awareness of Fragile X Syndrome
  • Guidance and Support to Fragile X Families
  • Contributions for Research Support other Fragile X Organizations
  • Legislative Advocates for Fragile X Syndrome.