About Our Foundation
The EHL Fragile X Foundation, Inc. is a 501(c)(3) foundation started in March 2017 by Steve and Fran Marsino of Cape Coral, FL. after their grandson Ethan was diagnosed with Fragile X syndrome.
Their hope was to create a platform to inform and educate families about Fragile X syndrome and its associated disorders, to support families going through the uncertainty of a Fragile X diagnosis, to foster understanding and inclusion in the community, and to support research for a cure for Fragile X.
- Community Awareness of Fragile X Syndrome
- Guidance and Support to Fragile X Families
- Contributions for Research Support other Fragile X Organizations
- Legislative Advocates for Fragile X Syndrome.